Dear EpiCARE members,
As we come to the end of 2017, I want to thank you all for your hard work and contributions as we move forward in establishing our network EpiCARE.
We are now almost at the end of the first year. Gradually aspects of the network are beginning to gel although a slow process.
As a network, this year we have established regular, virtual epilepsy surgery case discussions and steering group meetings, made consensus on the initial EpiCARE database format, launched a website and various social media channels to communicate better what we do.
With the Clinical Patient Management system in place, our focus for the New Year will be to develop cross-country referral pathways and registries as well as continuing with case discussions.
As approved centres, you are being asked to participate in many data collecting exercises. This is our first step to determining current practice.
It is important we continue to work together, and participating centres are seen to contribute in order to make this shared endeavour a success. We rely on your continuous input, your creativity and dedication, which has brought us to where we are today.
As we go into 2018, we plan for our first annual meeting and the first annual report requested participation is likely to increase. It is key we work together to move toward best practice for our patients with rare and complex epilepsies.
I look forward to a successful and productive 2018.
Happy Holidays!
Professor J Helen Cross OBE
The Prince of Wales’s Chair of Childhood Epilepsy
Head of Programme, Developmental Neurosciences
