Guidelines

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Guidelines 2017-12-06T13:59:16+00:00

Workpackage II – Guidelines

Summary

The development of clinical guidelines and care pathways is crucial to improve the access to diagnosis and treatment. Guideline development was a key deliverable of E-pilepsy; such will be essential to the provision of high-quality healthcare to all patients with rare and complex epilepsies. Guidelines should also be focal points for medical training and research. We will continue to use a transparent methodology (Grading of Recommendations Assessment, Development and Evaluation; GRADE) in order to ensure implementation of all available evidence, and involvement of all stakeholders. All developments will follow the rules of the GRADE Methodology, which uses the best available evidence along with expert opinion and patient representatives to develop explicit criteria to guide clinical care. Systematic reviews of relevant evidence will thus precede all further activities in this WP and will underpin all medical information, procedures, and applications developed in EpiCARE.

Objectives

  • To identify international epilepsy clinical care guidelines and assess their quality by using a systematic methodology.
  • To assess adherence to existing guidelines in Centres of the European Pilot reference Network E-pilepsy and the EpiCARE network
  • To determine gaps in areas of need of development of guidelines in epilepsy care of rare and complex drug resistant epilepsies, by undertaking systematic reviews of the relevant topics at stake
  • To develop clinical care guidelines together with the relevant medical societies and representatives of health care providers and patient groups

Deliverables

  • D II.1 Charter of working group at month 4
  • D II.2 Time line for systematic reviews years 2-5 at month 12
  • D III.3 Systematic reviews on most topics with other workpackages at month 48
  • D II.4 Audit on the adherence to clinical care guidelines and pathways at month 60

Milestones

  • M 3 Systematic reviews on available evidence
  • M 14 Clinical Care Guidelines for diagnosis, evaluation and management of rare epilepsies available most centers of the EpiCARE network

Leader

Professor Eugen Trinka, MD, MSc

Paracelsus Medical University Salzburg
Austria (as E-pilepsy)

Professor Eugen Trinka, MD, MSc

Dr Nicola Specchio, MD, Phd

Ospedale Pediatrico Bambina Gesu
Rome, Italy

Dr Nicola Specchio, MD, Phd

Dr. Federico Vigevano

Ospedale Pediatrico Bambina Gesu
Rome, Italy

Dr. Federico Vigevano