Christmas Message from Professor Helen Cross
Dear EpiCARE members, As we come to the end of 2017, I want to thank you all for your hard work and contributions as we move forward in establishing our network EpiCARE. We are now almost at the end of the first year. Gradually aspects of the network are beginning to gel although a slow […]
Clinical Patient Management System (CPMS) is live from 12pm CET 20th November 2017 – UPDATED 19/01/2018
The Clinical Patient Management System (CPMS) is one of the three digital tools commissioned by the European Commission besides the ERN Collaborative Platform and the ERN Public Website. The Clinical Patient Management System (CPMS) aims at supporting the work of the European reference networks in improving the diagnosis and treatment of rare or low prevalence […]
Patients and clinicians are reaping the benefits of European cooperation on rare and complex epilepsies | Professor Helen Cross
Specialist healthcare providers in the UK are part of a Europe-wide network which aims to improve the understanding and management of rare and complex epilepsies. If UK participation is discontinued following Brexit, patients and clinicians on both sides will be denied access to leading expertise and cutting-edge new treatments – with likely poorer outcomes. Epilepsy […]
The European Reference Networks Launch
The European Reference Networks were officially launched in Vilnius on 8/9 March 2017. The ERN EpiCARE held its inaugural launch meeting on 3rd June 2017 in London.