Competency-based e-learning in epileptology – testers wanted

International League Against Epilepsy

The International League Against Epilepsy is developing interactive, online epilepsy training modules. Each training module will be based on a clinical case that a ‘doctor’ needs to treat in a virtual hospital. EpiCARE will join this initiative and develop 10 rare epilepsy training modules. In 2020, the ILAE Academy will launch a series of case-based […]

EpiCARE ERN’s position regarding the new ERN application call

1. EpiCARE HCP membership / application criteria The European Commission will launch in the coming weeks the first call for new members to join existing 24 ERNs, following the adoption of the Commission Implementing Decision (EU) 2019/1269 of 26 July 2019 amending Decision 2014/287/EU. The European Reference Network for rare and complex epilepsies ERN EpiCARE […]

LAUNCH of the call for new members to join existing ERNs on the 30th September 2019

We are pleased to inform you that the call for new members to join existing ERNs is going to be open on the 30 of September 2019 until 30 of November 2019. You will find more information on the call and access to all relevant documents in the following website: https://ec.europa.eu/health/ern/consultations/2019_call_membership_en The application tool will […]

Report on the First 3 Years Cycle (2017-2019) of Epiped-Treatment Course

EPIPED COURSE on Treatment Strategies in Paediatric Epilepsies is an educational activity of the European Reference Network EpiCARE in partnership with the Paediatric Epilepsy Department of the University Hospitals of Lyon, France (HCL) and the Sant Joan de Déu, Barcelona, Spain, Research Foundation (FSJD). The report below highlights the findings of the first 3 years […]

1st International Symposium on Genetic Syndromes with Movement Disorders and Epilepsy

We have the pleasure to inform you that the 1st International Symposium on Genetic Syndromes with Movement Disorders and Epilepsy will be held in Barcelona, Spain on February 6-7, 2020. This first edition is organized in the continuity of the International Symposium on Child Movement Disorders, which gathered every other year more than 300 professionals from 30 different countries […]

How EpiCARE makes a difference for those with rare and complex epilepsies – ePAG Co-Chair shares her view with Genetic Alliance UK

Allison

Allison Watson, Co-Founder of Ring20 Research and Support UK CIO and Co-Chair of EpiCARE’s patient advisory group (ePAG) wrote on the benefits of European Reference Networks (ERNs) provide for rare disease patients across Europe. Her article was published on the Genetic Alliance UK’s blog. Genetic Alliance UK is national charity working to improve the lives […]

EpiCARE’s 2nd Annual Meeting

EpiCARE held its 2nd Annual Meeting on the 22nd-23rd February 2019 in London at the Holiday Inn Bloomsbury Hotel. On Friday 22nd February, we had a selection of expert group meetings running parallel for the following groups: – WP10 – Ketogenic diet expert group meeting – WP3 -Neuroimaging expert group meeting – WP4 – Neurophysiology […]