In the context of the EJP RD internal call for innovation projects in clinical trials methodologies in limited populations, that opened on 7th of December 2020 and will close on 3rd of March 2021, an “Information/Networking Event” will be organized on the 25th of January 2021. The meeting will take place online from 15:00 to 18:30.
All interested applicants are invited to participate in this event. The objectives of the meeting are as follows:
- Presentation of the call modalities and objectives followed by Q&A session with participants
- Presentation of various perspectives of the remaining challenges that the present call will target (for example in relation to: use of registries, innovation in methodology space, PCOMS, pharmacogenetic biomarkers and pharmacokinetics development, the vision of regulators on future of RD clinical trials, model for innovating therapy in ultra RDs, ethical guidance)
- Open session for participants to discuss the gaps that they would like to tackle and initiate partnerships among interested parties.
The registration to the meeting is mandatory and will close on the 18 of January 2021.
Please register here and the detailed agenda of the meeting can be found here.
If you have any questions or need help please contact us at: innovation.callsec@ejprarediseases.org
The aim of the 3-year cycle EPIPED training course, endorsed between others by the ERN EPICARE, the ILAE EUROPE and the EPNS, is to reduce the geographical and knowledge gap by providing neurologists and child neurologists involved in epilepsy care the opportunity for a regular update on best treatment practices in children with epilepsies.
The concept of EPIPED is based on a 3-year cycle of independent annual training courses, developed specifically for child neurologists, physicians and epilepsy nurses caring for patients with epilepsy.
A limited number of plenary interactive sessions cover different aspects of treatment strategies in children with all types of epilepsies, particularly the rare and complex ones. Topics treated are related to pharmacology, pharmacodynamics, pharmacokinetics, genetics, analysis of AED trials, design of clinical trials, pre-surgical evaluation, optimal choice of AEDs, review of existing guidelines (ILAE, NICE, other), data on ketogenic diet, neurostimulation, indications for resective and palliative surgery, pharmacological treatments other than with AEDs, update on the development of targeted therapies. This link gives you access to the full program of the 3 years cycle: https://www.epiped-course.com/PROGRAM_a24.html
An important number of interactive modules allow participants, limited to 10-15 per group, to discuss with experts regarding the best clinical practices and therapeutic strategies. Participants, limited to 40-45, are offered the opportunity to also bring their own clinical cases for discussion of optimal treatment approaches. This educational activity is addressing the corresponding learning objectives of the ILAE curriculum (Blümcke et al 2019).
We are delighted to invite you to what will be the 8th Oxford Masterclass in Epileptology at Corpus Christi College, Oxford. The Masterclasses aim to tackle a difficult area of epileptology over the course of a day with renowned national and international speakers. We encourage the sessions to be interactive with time for discussion after each talk and over the tea/coffee and lunch breaks.
The theme this year is the transition of people with epilepsy.
We very much hope that you will be able to join us in Oxford!
The main objective of the 7th edition of the Advanced Epilepsy Course Bridging Basic with Clinical Epileptology is to train attendees to improve the critical competencies necessary to design an effective research project/activity in the field of epilepsy.
Reliable neuropathological work-up of epilepsy-associated brain lesions represents an important diagnostic value for the surgical management of patients with drug-resistant focal epilepsy. The international classification of epilepsies recognizes a large spectrum of brain lesions as potential predictors of disease progression and treatment response.
The 11th International Summer School for Neuropathology and Epilepsy Surgery is designed to enable participants to better recognize and classify various histopathological substrates of drug-resistant epilepsy. Topics related to the diagnosis and treatment of human focal epilepsies will be presented by internationally renowned faculty. Advanced hands-on histopathology training will be offered in small groups led by distinguished tutors who will review and discuss microscopy slides of selected cases with different staining protocols. Participants will also have the opportunity to present their own cases for discussion with the entire group. The workshop has been held in Germany, Brazil, USA and China since 2013, with the endorsement of the International League Against Epilepsy (ILAE).