Patients are taking on ever increasing roles in advocating for medicines development, equal access to treatments across Europe and ensuring that medical information is clear, accurate and comprehensible. In order to help prepare them for these roles and as part of its commitment to empowering people living with rare diseases, EURORDIS launched its own training programme for expert patients in 2008.
The programme allows patients and researchers to sharpen their advocacy skills and gain an understanding of the regulatory process of orphan medicinal products so that they are able to advocate at a European level.
The programme has online and face-to-face components. The face-to-face portion trains 40 expert patients annually as part of an intensive 4.5-day course held in Barcelona, Spain.
The next edition of the EURORDIS Summer School will take place in 11 – 15 June 2018 in Barcelona.
If you have any questions regarding the EURORDIS Summer School please contact Nancy Hamilton firstname.lastname@example.org.
Following on from the First European Conference on GLUT1 Deficiency that was held in Milan in 2016, we continue with our biennial developmental programme of conferences to increase knowledge and awareness of this specific rare disease by bringing together experts in the field.
For more information, please click here.
Please note the timezone for this event is CET
Please note the timezone for this event is CET
The 8th International Summer School for Neuropathology and Epilepsy Surgery will be designed to enable participants to better recognize and classify various histopathological substrates of pharmaco-resistant epilepsy. The workshop has been held in Germany, Brazil, USA and China since 2013, with continuous endorsement of the International League Against Epilepsy. Topics related to the diagnosis and treatment of human focal epilepsies will be presented by internationally renowned faculty. Advanced hands-on histopathology training will be offered in small groups led by distinguished tutors who will review and discuss microscopy slides of selected cases with different staining protocols. Participants will also have the opportunity to present their own cases for discussion with the entire group.
1. Discuss diagnostic evaluation of surgical specimens, with particular emphasis on mesial temporal lobe epilepsy with hippocampal sclerosis, epilepsy-associated tumors, malformations of cortical development, focal cortical dysplasia, vascular malformations, and encephalitis.
2. Disseminate new and upcoming clinico-pathologic classification systems among the neuro-/pathology communities and to validate existing and up-coming consensus classification systems by a larger cohort of practicing neuro-/pathologists.
3. Recognize and classify various histopathological substrates of pharmaco-resistant epilepsy.
Neuro-/Pathologists, Epileptologists, Neurosurgeons & Neurologists, Neuroimager and Basic Researcher
Course language is English
Our summer school will be restricted to 26 attendees, which will be trained in small groups at the multihead microscope by expert tutors (see invitation flyer). A collaborative virtual microscopy platform will be also available for all participants to microscopically review our cases before, during and after the meeting. You will always have the opportunity to meet and discuss these cases with our tutors. In addition, there will be a morning lecture addressing broader topics for better understanding of a clinician’s perspective, in particular about the role of a detailed neuropathological diagnosis for directing clinical decision-making.
We are particularly keen to encourage participants from low- or middle income countries to attend our summer school. We can offer a limited number of travel bursaries from the Intl Society of Neuropathology. Decision for additional travel grants from ILAE is pending. However, you will need to fully register (including payment of registration fee) before applying for these bursaries, although you should already indicate if such support will be requested.
The registration fee for INES 2015 is 300,- Euro (equivalent to 1000,- Real). This fee will include the INES booklet, daily lunch and beverages as well as a welcome reception. All payment details will be forwarded to you after your application has been accepted.
Your application should be an informal letter specifying your level of expertise in histopathology: experienced OR beginner, together with a short CV. Please, send your application before February 1st, 2018 (deadline) by email to email@example.com. Applications including a letter of recommendation from your local Epilepsy Center will have a higher probability to be accepted ! As we will accept incoming applications on the basis of ‘first come – first serve’, please submit your application as soon as possible.
Please help us to reach more people with specific interest and disseminate this invitation to your colleagues, local epilepsy center and national ILAE chapter!
We hope to welcoming you soon in Erlangen
Bi-monthly patient panel meeting for EpiCARE.