Rare epilepsies patient’s journeys describe the specific needs and goals of a patient’s path for a rare or complex Epilepsy. They describe the health-care pathway, provide a key perspective of those living with a rare disease, and allow for a constructive discussion between clinicians and patients.

The ePAG advocates made these journeys available by mapping the needs and expectations for each stage of the care pathway, for 2 rare and complex epilepsies so far.

Please note that these documents are being developed progressively. We will add more regularly.

In order to stay informed, visit our website regularly.

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Read and download the patients’ journey of: