Rare epilepsies patient’s journeys describe the specific needs and goals of a patient’s path for a rare or complex Epilepsy. They describe the health-care pathway, provide a key perspective of those living with a rare disease, and allow for a constructive discussion between clinicians and patients.
The ePAG advocates made these journeys available by mapping the needs and expectations for each stage of the care pathway, for 2 rare and complex epilepsies so far.
Please note that these documents are being developed progressively. We will add more regularly.
In order to stay informed, visit our website regularly.