Rare Disease Research: European Reference Networks Are Off To a Good Start
One year on from their launch, the European reference networks are helping patients access treatment and research from across the EU, writes Vytenis Andriukaitis. Elisa, from Alessandria in Italy, suffers from osteogenesis imperfecta. This rare genetic disease causes brittle bones and affects one in 15,000 people. Elisa, aged 30, was diagnosed with the disease as […]
