Together4RD

Together for Rare Diseases (Together4RD) is an agile multi-stakeholder initiative aimed at supporting ERNs to collaborate with stakeholders to pursue opportunities that will address unmet medical needs of people living with rare diseases.

Some Together4RD actions

Position Statement on Collaboration between ERNs and industry

Collaboration Case Studies

Policy Asks: Recommendations to unlock ERN and industry collaboration for the benefit of people living with a rare disease

Professor Alexis Arzimanoglou is a member of the Sterring Group. The European Collaboration for Epilepsy Trials (ECET; webpage) is listed as one of the Collaboration Case Studies.

Sébile Tchaicha

For more information, please do not hesitate to contact Sébile Tchaicha, the ERN EpiCARE Research project manager ([email protected]) who is following up the activities of Together4RD and collaborates with the group.