The network was initially (2017-2019) coordinated by Great Ormond Street Hospital (GOSH) for Children NHS Trust, London, UK, and led by Professor Helen Cross. In March 2019, as a consequence of “Brexit”, the coordination of EpiCARE has been transferred from GOSH to the University Hospitals of Lyon (HCL), and is led by Professor Alexis Arzimanoglou. A close collaboration between Professors Cross and Arzimanoglou, and all the members of the Steering Committee guarantees the continuity of all missions undertaken since the creation of EpiCARE.
Get to know the members of EpiCARE:
Professor Alexis Arzimanoglou
Professor Alexis Arzimanoglou is heading the Department of Paediatric Clinical Epileptology, Sleep Disorders and Functional Neurology at the Hospices Civils de Lyon, France. He is the Epilepsy Research coordinator for the Sant Joan de Déu Childrens’ Hospital in Barcelona, Spain.
His clinical and research activities mainly focus on the pharmacological and surgical management and genetics of childhood epilepsies and topics related to cognitive function and dysfunction in children with focal epilepsies. He has served as President of the French chapter of the ILAE, Chair of the Scientific Committee of the European Paediatric Neurology Society (EPNS) and visiting Professor at the Universitat de Barcelona. He is Editor-in-chief of the educational journal of the International League Against Epilepsy, Epileptic Disorders and Associate Editor of the European Journal of Paediatric Neurology.
Pr Arzimanoglou was awarded ILAE/IBE Ambassador for Epilepsy in 2007, and received by the EPNS the Aicardi Award for excellence in Paediatric Neurology in 2017.
Professor J. Helen Cross
OBE, MB, ChB, PhD, FRCP, FRCPCH
Professor Helen Cross is The Prince of Wales’s Chair of Childhood Epilepsy, Head of Developmental Neurosciences Programme of the UCL Institute of Child Health. She is also Honorary Consultant in Paediatric Neurology at Great Ormond Street Hospital NHS Trust, London and Young Epilepsy, Lingfield.
Her research has been targeted at improving outcomes in early-onset epilepsy, specifically in assessing the role of surgery and ketogenic diet. She is elected Treasurer of the International League Against Epilepsy 2017-2021, Clinical Advisor to the National Children’s Epilepsy Surgery Service, Chair of the BPNA Research Committee, and Chair of the Neurosciences Clinical Study Group of the Clinical Research Network (Children).
She holds NIHR Senior Investigator status 2016-2020. She was awarded ILAE/IBE Ambassador for Epilepsy in 2007, and an OBE in the Queen’s Birthday Honours in 2015. Professor Cross was recently elected President of the International League Against Epilepsy for 4 years (2021-2024).
Vilnius, March 10th, 2017 – Launching the ERN EpiCARE
Arzimanoglou Alexis (ERN Coordinator)
Beniczky Sandor
Blumcke Ingmar
Braun Kees
Cross Helen
Guerrini Renzo
Helmstaedter Christoph
Kalviainen Reetta
Lagae Lieven
Lossius Morten Ingvar
Malenica Maša
Marusič Petr
Nabbout Rima
Pressler Ronit
Rubboli Guido
Ryvlin Philippe
Specchio Nicola
Surges Rainer
Trinka Eugen
Vigevano Federico
Patient representatives:
Brambilla Isabella
Watson Allison
Carolina Ciumas, PhD
Research and Surgery WG liaison
Martin Geroldinger
Guidelines project manager
Clotilde Guérineau
Helpdesk
ANT Congrès
Nicola Openshaw-Lawrence
E-learning and data manager – CPMS coordinator
Anne Robert
Communication manager
Sébile Tchaicha
Research projects manager
Johanna Van Hulle
Registry and data manager
ERN EpiCARE Terms of Reference and Terms of Engagement, presented at the General Assembly of members (February 18th, 2022) and voted in their final version by the Executive Committee on March 9th, 2022
Centre | Country | City | Lead |
---|---|---|---|
University Hospital Centre SestreMilosrdnice - KliničkibolničkicentarSestremilosrdnice | Croatia | Zagreb | Pr. Maša Malenica |
Department of Neurology, School of Medicine, University Hospital Centre Zagreb | Croatia | Zagreb | Assoc. Prof. Željka Petelin Gadže |
The Cyprus Foundation For Muscular Dystrophy Research / Cyprus Institute of Neurology and Genetics | Cyprus | Nicosia | Pr. Savvas Papacostas |
Epilepsiklinikken, Rigshospitalet-Blegdamsvej and Danish Epilepsy Center Filadelfia | Denmark | Copenhagen | Pr. Anna Sabers and Pr. Guido Rubboli |
Aarhus Universitets hospital | Denmark | Aarhus | Assoc. Prof Jakob Christensen |
Tartu University Hospital | Estonia | Tartu | Dr. Ulvi Vaher |
Tallin Children’s Hospital | Estonia | Tallin | Dr. Inga Talvik |
University Children’s Clinical Hospital - Bērnu klīniskā universitātes slimnīca | Latvia | Riga | Dr. Jurģis Strautmanis |
Hospital of the Lithuanian University of Health Sciences Kaunoklinikos | Lithuania | Kaunas | Giedre Gelziniene |
Department of Neurology, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University | Lithuania | Vilnius | Pr. Ruta Mameniskiene |
Centre Hospitalier de Luxembourg | Luxembourg | Luxembourg | Dr. Martine Goergen |
MALTA Mater Dei Hospital | Malta | Msida | Dr. James Clark |
Centre | Country | City | Lead |
---|---|---|---|
Department of Epileptology and Epilepsy Surgery CHU Grenoble | France | Grenoble | Pr. Philippe Kahane |
Clinical Investigation Centre (CIC), University Hospitals of Lyon (HCL) | France | Lyon | Pr. Behrouz Kassaï-Koupaï |
Network for Therapy in Rare Epilepsies (NETRE) | Germany | Vogtareuth | Pr. Gerhard Kluger |
Greek Rare Epilepsies Consortium (GREC), Attikon, Athens and St. Luke’s, Thessaloniki Hospitals | Greece | Athens | Pr. A. Dinopoulos and Dr. K. Garganis |
Infant Research Centre | Ireland | Cork | Pr. Geraldine Boylan |
Beaumont Hospital | Ireland | Dublin | Dr Norman Delanty |
Epilepsy Alliance Europe | Ireland | Dublin | Eugen Trinka, Norman Delanty,, Francesca Sofia, Helen Cross |
International Bureau for Epilepsy | Ireland | Dublin | Francesca Sophia |
Centre Hospitalier Universitaire Vaudois | Switzerland | Lausanne | Pr. Philippe Ryvlin |
Queen Elizabeth University Hospital | United Kingdom | Glasgow | Pr. Sameer Zuberi |
Matthew's Friends Clinics for Ketogenic Dietary Therapies | United Kingdom | Lingfield | Emma Williams, MBE |
Great Ormond Street Hospital for Children NHS Trust | United Kingdom | London | Pr. J. Helen Cross |
University College London Hospitals NHS Foundation Trust | United Kingdom | London | Pr. Matthew Walker |
Oxford University Hospitals NHS Foundation Trust | United Kingdom | Oxford | Dr. Arjune Sen |
Menu
Funding
The ERN EpiCARE was created in 2017 and is co-funded by the European Union.
EpiCARE © 2021 all rights reserved | Privacy Policy | Webdesign : Marc Chaperon
Cookie | Duration | Description |
---|---|---|
cookielawinfo-checbox-analytics | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics". |
cookielawinfo-checbox-functional | 11 months | The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional". |
cookielawinfo-checbox-others | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other. |
cookielawinfo-checkbox-advertisement | 1 year | The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Advertisement". |
cookielawinfo-checkbox-necessary | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary". |
cookielawinfo-checkbox-performance | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance". |
viewed_cookie_policy | 11 months | The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data. |
Cookie | Duration | Description |
---|---|---|
YSC | session | This cookies is set by Youtube and is used to track the views of embedded videos. |
Cookie | Duration | Description |
---|---|---|
_ga | 2 years | This cookie is installed by Google Analytics. The cookie is used to calculate visitor, session, campaign data and keep track of site usage for the site's analytics report. The cookies store information anonymously and assign a randomly generated number to identify unique visitors. |
Cookie | Duration | Description |
---|---|---|
IDE | 1 year 24 days | Used by Google DoubleClick and stores information about how the user uses the website and any other advertisement before visiting the website. This is used to present users with ads that are relevant to them according to the user profile. |
NID | 6 months | This cookie is used to a profile based on user's interest and display personalized ads to the users. |
test_cookie | 15 minutes | This cookie is set by doubleclick.net. The purpose of the cookie is to determine if the user's browser supports cookies. |
VISITOR_INFO1_LIVE | 5 months 27 days | This cookie is set by Youtube. Used to track the information of the embedded YouTube videos on a website. |
Cookie | Duration | Description |
---|---|---|
_ga_K3WGJ1B9KB | 2 years | No description |
CONSENT | 16 years 7 months 7 days 16 hours 17 minutes | No description |