The network was initially (2017-2019) coordinated by Great Ormond Street Hospital (GOSH) for Children NHS Trust, London, UK, and led by Professor Helen Cross. In March 2019, as a consequence of the “Brexit”, the coordination has been transferred from GOSH to the University Hospitals of Lyon (HCL), and led by Professor Alexis Arzimanoglou. A close collaboration between Professors Cross and Arzimanoglou and all the members of the Steering Committee guarantees the continuity of all missions undertaken since the creation of EpiCARE.

Coordination team

Professor Alexis Arzimanoglou

Professor Alexis Arzimanoglou is heading the Department of Paediatric Clinical Epileptology, Sleep Disorders and Functional Neurology at the Hospices Civils de Lyon, France and is the Epilepsy Research coordinator for the Sant Joan de Déu Childrens’ Hospital in Barcelona, Spain.

His clinical and research activities mainly focus on the pharmacological and surgical management and genetics of childhood epilepsies and topics related to cognitive function and dysfunction in children with focal epilepsies. He served as President of the French chapter of the ILAE, Chair of the Scientific Committee of the European Paediatric Neurology Society (EPNS) and visiting Professor at the Universitat de Barcelona. He is Editor-in-chief of the educational journal of the International League Against Epilepsy, Epileptic Disorders and Associate Editor of the European Journal of Paediatric Neurology.

Pr Arzimanoglou was awarded ILAE/IBE Ambassador for Epilepsy in 2007, and received by the EPNS the Aicardi Award for excellence in Paediatric Neurology in 2017.

Professor J. Helen Cross OBE
MB, ChB, PhD, FRCP, FRCPCH

Professor Helen Cross is The Prince of Wales’s Chair of Childhood Epilepsy, Head of Developmental Neurosciences Programme of the UCL Institute of Child Health and Honorary Consultant in Paediatric Neurology at Great Ormond Street Hospital NHS Trust, London and Young Epilepsy, Lingfield.

Her research has been targeted at improving outcomes in early-onset epilepsy, specifically in assessing the role of surgery and ketogenic diet. She is elected Treasurer of the International League Against Epilepsy 2017-2021, Clinical Advisor to the National Children’s Epilepsy Surgery Service, Chair of the BPNA Research Committee, and Chair of the Neurosciences Clinical Study Group of the Clinical Research Network (Children).

She holds NIHR Senior Investigator status 2016-2020. She was awarded ILAE/IBE Ambassador for Epilepsy in 2007, and an OBE in the Queen’s Birthday Honours in 2015. Professor Cross was recently elected President of the International League Against Epilepsy for 4 years (2021-2024).

Steering Committee

Alexis Arzimanoglou (France, Spain); Carmen Barba (Italy); Sandor Beniczky (Denmark); Ingmar Blumcke (Germany); Isabella Brambilla (Italy); Kees Braun (The Netherlands); Helen Cross (UK); Renzo Guerrini (Italy); Christoph Helmstaedter (Germany); Lieven Lagae (Belgium); Ann Little (Ireland);Petr Marusic (Czech Republic); Reetta Kalviainen (Finland); Rima Nabbout (France); Ronit Ressler (UK); Philippe Ryvlin (Switzerland); Nicola Specchio (Italy); Rainer Surges (Germany); Eugen Trinka (Austria); Federico Vigevano(Italy); Emma Williams (UK)

Project management team

  • Judit Germuska
    Scientific missions manager
  • Laurène Mathey
    Administrative and finances project manager
  • Nicola Openshaw-Lawrence 
    Operational Helpdesk Coordinator/Data Manager
  • Stéphanie Cervantes
    Epilesy Nurse coordination
  • Laurie Vera
    Administrative and communication assistant

Centres

CentreCountryCityLead
University Hospital Gasthuisberg KU LeuvenBelgiumLeuvenPr. Lieven Lagae
St. Anne's University HospitalCzech RepublicBrnoPr. Milan Brazdil
Motol University HospitalCzech RepublicPraguePr. Petr Marusic
Pohjois-Savon sairaanhoitopiiri (Kuopio University Hospital) FinlandKuopioPr. Reetta Kalviainen
CHRU LILLE, Epilepsy UnitFranceLillePr. Sylvie Nguyen
Epilepsy Departments, University Hospitals of Lyon (HCL)FranceLyonPr. Alexis Arzimanoglou
Hôpital Necker – Enfants MaladesFranceParisPr. Rima Nabbout
University Hospital Bonn, Department of EpileptologyGermanyBonnPr. Rainer Surges
Epilepsy Centre, University Hospital FreiburgGermanyFreiburgPr. Andreas Schulze-Bonhage
IRCCS Institute of Neurological Sciences of Bologna (INSB)-AUSL di BolognaItalyBolognaDr. Francesca Bisulli
Azienda Ospedaliero-Universitaria A. Meyer, UO Neurologia PediatricaItalyFlorencePr. Renzo Guerrini
Fondazione IRCCS Istituto Neurologico Carlo Besta, Ospedale Ninguarda, Ospedale Sao PaoloItalyMilanDr. Tiziana Granata
Fondazione Istituto Neurologico Nazionale Casimiro MondinoItalyPaviaPr. Emilio Perucca and Dr. Valentina de Giorgis
Ospedale Pediatrico Bambino GesùItalyRomePr. Federico Vigevano
University Medical Center Utrecht, Brain Centre Rudolf MagnusNetherlandsUtrechtPr. Kees P. J. Braun
The Children's Memorial Health InstitutePolandWarsawPr. Katarzyna Kotulska-Jozwiak
Centro Hospitalar e Universitario de CoimbraPortugalCoimbraDr. Francisco Sales
Centro de Referencia de Epilepsias Refractrias, Hospital de Santa MariaPortugalLisbonPr. Carla Bentes
Centro Hospitalar do PortoPortugalPortoDr. Rui Rangel
Alexandru Obregia Clinical HospitalRomaniaBucharestPr. Dana Craiu
Hospital Sant Joan de Deu Children’s Hospital and Hospital Clinic (Adults)SpainBarcelonaDr. Mar Carreno
Hospital Del Mar-Parc de Salut MarSpainBarcelonaPr. Rodrigo Rocamora Zuñiga
Hospital Universitario y Politecnico La FeSpainValenciaDr. Vincente Villaneva Haba
Sahlgrenska University HospitalSwedenGothenburgPr. Kristina Malmgren
Queen Elizabeth University HospitalUnited KingdomGlasgowPr. Sameer Zuberi
Great Ormond Street Hospital for Children NHS TrustUnited KingdomLondonPr. J. Helen Cross
University College London Hospitals NHS Foundation TrustUnited KingdomLondonPr. Matthew Walker
Oxford University Hospitals NHS Foundation TrustUnited KingdomOxfordDr. Arjune Sen

Affiliated Centres

CentreCountryCityLead
Christian Doppler University Hospital, Paracelsus Medical UniversityAustriaSalzburgPr. Eugen Trinka
Center for Pediatric Epilepsy / Dpt. of Pediatrics, Medical University of ViennaAustriaViennaPr. Martha Feucht
University Hospital Centre SestreMilosrdnice - KliničkibolničkicentarSestremilosrdniceCroatiaZagrebPr. Maša Malenica
Department of Neurology, School of Medicine, University Hospital Centre ZagrebCroatiaZagrebAssoc. Prof. Željka Petelin Gadže
The Cyprus Foundation For Muscular Dystrophy Research / Cyprus Institute of Neurology and GeneticsCyprusNicosiaSavvasPapacostas
Epilepsiklinikken, Rigshospitalet-BlegdamsvejDenmarkCopenhagenPr. Anna Sabers
Aarhus Universitets hospitalDenmarkAarhusAssoc. Prof Jakob Christensen
Tartu University HospitalEstoniaTartuDr. Ulvi Vaher
Tallin Children’s HospitalEstoniaTallinDr. Inga Talvik
National Institute of Clinical Neurosciences -
Országos Klinikai Idegtudományi Intézet
HungaryBudapestDr. Anna Kelemen
University Children’s Clinical Hospital - Bērnu klīniskā universitātes slimnīcaLatviaRigaDr. Jurģis Strautmanis
Hospital of the Lithuanian University of Health Sciences KaunoklinikosLithuaniaKaunasGiedre Gelziniene
Department of Neurology, Institute of Clinical Medicine, Faculty of Medicine, Vilnius UniversityLithuaniaVilniusPr. Ruta Mameniskiene
Centre Hospitalier de LuxembourgLuxembourgLuxembourgDr. Martine Goergen
MALTA Mater Dei HospitalMaltaMsidaDr. James Clark

Organisations We Also Work With

CentreCountryCityLead
ILAE-EUROPEAustriaSalzburgEugen Trinka
Universitatsklinikum Erlangen
GermanyErlangenPr. Ingmar Blumke
Infant Research CentreIrelandCorkPr. Geraldine Boylan
Epilepsy Alliance EuropeIrelandDublinEmilio Perruca, Norman Delanty, Ann Little
International Bureau for EpilepsyIrelandDublinAnn Little
Centre Hospitalier Universitaire VaudoisSwitzerlandLausannePr. Philippe Ryvlin
Matthew's Friends Clinics for Ketogenic Dietary TherapiesUnited KingdomLingfieldEmma Williams, MBE