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EpiCARE Revised Orphanet Summaries

The Orphanet website provides disease summary texts that are primarily intended for healthcare professionals. They focus on clinically relevant information and with a particular focus on disease definition, diagnosis, clinical description and management of a rare disease.

The EpiCARE Revised Orphanet Summaries is included in the Working Group 2. 

On the Orphanet Website, you can find the Summaries in the field of epilepsy.

EpiCARE Revised Orphanet Summaries
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The medical team members of the European Reference Network EpiCARE, in collaboration with patient advocates, develop and deliver highly-specialized diagnostics and care to improve interventions and outcome in individuals with rare and complex epilepsies.

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Funding

The ERN EpiCARE was created in 2017 and is funded by the European Union.

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