Case discussions are an integral part of all ERNs and are in line with the European Commission’s Directive. EpiCARE undertakes regular case discussions in specialised areas of the rare and complex epilepsy field, including surgical and non-surgical cases, neuropsychology and neuropathology.
Case discussions utilise the Clinical Patient Management System (CPMS) which is an online secure and encrypted platform, provided by the EU. It allows for freeflowing discussion amongst experts, enabling complex patient cases to have multi expert input and therefore optimise the care and treatment of rare and complex epilepsy patients. There are two ways in which cases can be discussed and these are in an online meeting area within the CPMS platform or via written contributions, both avenues allow for detailed examination of each case and feedback provision.
Other clinical cases are discussed at face-to-face meetings, organized by EpiCARE members (ex. U-Task; Stereo-EEG course; EPIPED and Tagliacozzo courses, endorsed by ILAE-Europe).
The members of this WG are working to increase attendance and participation in these case discussions and to highlight areas within the rare and complex epilepsy field that would benefit from these multi-disciplinary discussions. Currently we have at least 3 regular sessions per month: for both potentially surgical cases and/or surgical successes or failures, as well as for non-surgical cases. We also support sessions organized by other EpiCARE WGs bringing together experts in neuropathology, neuropsychology, neuroimaging and genetics.
Detailed information on how an EpiCARE member can submit a complex case for discussion or how to join a discussion as an expert or simply for educational purposes are provided. If you are interested to join one of our expert panels and/or be informed about sessions related to your field of expertise please use the contact form.
September 2025. Lisbon (Portugal). Nicola Specchio. You are at the initiative of the Rome workshop, called “In search of lost time”. Why this title? What is the added value of this workshop compared to other scientific workshops?
Videos and Guide – CPMS 2.0
CPMS 2.0 Tutorial – General overview
Sign up Tutorial (Clinician and Guest)
CPMS 2.0 – Creating a Patient Record
If you are interested to voluntarily contribute to this WG activities, please use the contact form to let us know.
