Ketogenic dietary therapies (KDTs) are well-established, safe, non-pharmacologic treatments used for children and adults with drug-resistant epilepsy.
Diet quality plays a vital role in the achievement and maintenance of optimal ketosis, thus, an individualized approach, constant monitoring and the assurance of a prompt interface with keto-team are fundamental. The achievable success of KDTs in seizure reduction does address a primary therapeutic concern. However, it is now widely shared that the efficacy of KDTs might go beyond seizure reduction. Though, no standardized and repeatable assessment guidelines and tools have been implemented to verify non-seizure benefits of KDTs on other disease aspects such as attention, alertness, social interaction, daily living abilities exc.
Standardized and targeted tools are needed to measure disease outcomes other than seizures control. Moreover, clinicians should identify patients’ and parents’ unmet needs that might influence quality of life and adherence to KD. Thus, the importance to develop a shared standardized protocol to guide the global clinical assessment among EpiCARE Centers.
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