The European Reference Networks (ERNs) were launched in 2017. They involve more than 900 highly specialised health care teams, located in more than 300 hospitals in 26 European countries. The main mission of the ERNs is to help patients with rare or low-prevalence complex diseases.
A disease is defined as rare when it affects fewer than one in 2 000 people, is serious, chronic and often life-threatening. Between 5 000 and 8 000 of rare diseases affect daily life of around 30 million people in the EU.
The ERN EpiCARE brings together highly specialized health centres (38 full members and 12 affiliated partners) in 26 European countries with expertise in rare and complex epilepsies.
If you are a healthcare professional and would like to refer a patient to us, or if you are a patient yourself, or a family member of a patient, please get in touch via our contact page.
EpiCARE has launched a series of educational webinars presented by our experts. These webinars on rare and complex epilepsies are free to join from anywhere in the world, however pre-registration is required.
The next webinar you can’t miss:
Join us for an insightful webinar: “How to pathologically and genetically diagnose FCD”. An excellent opportunity to expand your knowledge!
Click here to access to past webinars
