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University Hospital of Lyon (HCL)
Lyon, France

https://www.chu-lyon.fr/fr/centre-de-reference-pour-les-epilepsies-rares

https://www.chu-lyon.fr/fr/epilepsies-rares-et-complexes-un-reseau-europeen-coordonne-lyon

Membership type : Full member
Patient age range : Children and Adults
Partner within an EpiCARE Consortium : No

HCP Coordinator : Pr. Gaetan LESCA, Dr. Karine OSTROWSKY-COSTE

On site key treatment and care facilities
RESECTIVE SURGERY
RESECTIVE SURGERY
RESECTIVE SURGERY
RESECTIVE SURGERY
CORPUS CALLOSOTOMY
THERMOCOAGULATION
EDUCATIONAL THERAPY PROGRAM
On site key diagnostic facilities
FIRST SEIZURE OUTPATIENT CLINIC
CONTINUOUS VIDEO-EEG MONITORING (> 24H)
METABOLIC SCREENING
NEUROPSYCHOLOGICAL EVALUATION CLINIC
HIGH RESOLUTION MRI (1.5 T)
HIGH RESOLUTION MRI (3 T)
MR SPECTROSCOPY
FUNCTIONAL MRI
PET
MAGNETOENCEPHALOGRAPHY
FIRST SEIZURE OUTPATIENT CLINIC
GENETICS: GENE PANEL EPILEPSY
GENETICS: GENE PANEL LEARNING DIFFICULTIES
SPECIALIST NEUROBIOCHEMICAL LABORATORY (mass spectroscopy; other)
SPECIFIC IMMUNE ASSAY DIAGNOSTICS
CSF NEUROTRANSMITTERS
INVASIVE RECORDINGS (STEREO-EEG)
INVASIVE RECORDINGS (SUBDURAL GRIDS)
ELECTROCORTICOGRAPHY
FIRST SEIZURE OUTPATIENT CLINIC
Contact person for adults Referral
Sylvain RHEIMS
hcl.epilepsie@chu-lyon.fr
+33 4 72 11 93 43
French, English
Contact person for children Referral
Karine OSTROWSKY-COSTE
sophie.naous@chu-lyon.fr
+33 4 27 85 60 40
French, English, Spanish, Greek
Medical teams and onsite competencies
CLINICAL EPILEPTOLOGY (Adult)
Sylvain RHEIMS
Sébastien BOULOGNE
Hélène CATENOIX
Nathalie ANDRE-OBADIA
Julien JUNG
Alexandra MONTAVONT

CLINICAL EPILEPTOLOGY (Children)
Eleni PANAGIOTAKAKI
Marietta PAPADOPOULOU
Joseph TOULOUSE
Marion COMAJUAN
Dorothée VILLE
Karine OSTROWSKY-COSTE
Julitta DE BELLESCIZE
Alexandra MONTAVONT
Zeynep GOKCE-SAMAR

NEUROPHYSIOLOGY (Video-EEG)
Karine OSTROWSKY-COSTE
Julitta DE BELLESCIZE
Alexandra MONTAVONT
Sylvain RHEIMS
Sébastien BOULOGNE
Hélène CATENOIX
Nathalie ANDRE-OBADIA
Julien JUNG
Eleni PANAGIOTAKAKI
Marietta PAPADOPOULOU
Joseph TOULOUSE
Marion COMAJUAN

EPILEPSY NEURORADIOLOGIST
Marc HERMIER

NEUROPSHYCHOLOGIST
Vania HERBILLON
Faustine LECOANET
Agathe MARCASTEL
Victoria GUINET



CLINICAL GENETICIST
Gaetan LESCA

NEONATAL EPILEPSIES
Dorothée VILLE

NEUROPATHOLOGIST
Nathalie STREICHENBERGER

EPILEPSY NEUROSURGEON
Marc GUENOT
Pierre-Aurélien BEURIAT

FUNCTIONAL NEUROSURGERY
Marc GUENOT
Pierre-Aurélien BEURIAT

PSYCHIATRY (children)
Pierre FOURNERET

INVASIVE RECORDINGS PLANNING (SEEG)
Karine OSTROWSKY-COSTE
Alexandra MONTAVONT
Sylvain RHEIMS
Hélène CATENOIX
Jean ISNARD
Sébastien BOULOGNE
Julien JUNG

PET REPORTING (EPILEPSY SPECIALIST)
Karine OSTROWSKY-COSTE
Sandrine BOUVARD

DIETICIAN
Charlotte GARNIER
Corentin NAUD

EPILEPSY NURSES
Stéphanie CERVANTES
Annie MAYAUX
Yvette KENGBO
Murie RENAULT
Virginie FAVELLET

CLINICAL RESEARCH ASSISTANTS
Mathilde LECLERCQ
Léa BARBIERI

EpiCARE logo

The medical team members of the European Reference Network EpiCARE, in collaboration with patient advocates, develop and deliver highly-specialized diagnostics and care to improve interventions and outcome in individuals with rare and complex epilepsies.

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Funding

The ERN EpiCARE was created in 2017 and is co-funded by the European Union.

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