ERNs support “call to action” – Czech presidency of the council of the European Union

The 2nd Strategy Assembly of Coordinators and Project Managers of the 24 European Reference Networks for Rare and Complex Diseases, held in Lyon, France on Tuesday, November 22nd, 2022, unanimously endorsed the “Call to Action
from the Expert Conference on Rare Diseases organized by the Czech Presidency of the EU Council in Prague (October 25th – 26th , 2022).

Called “Towards a new European policy framework on rare diseases: Building the future together for rare diseases”, this call to action aims to explore how the EU can take steps towards a common strategy for rare diseases, to better address unmet needs and to set new goals.

Read the official letter of the ERN Coordinators

Read the Call To Action

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