EpiCARE is delighted to report that on the 26th March 2018, on Purple Day for Epilepsy, we enrolled our first three patients in the Clinical Patient Management System (CPMS). All patients are from Great Ormond Street Hospital for Children, London. On the same day we also launched our first panel and the first virtual meeting was held in CPMS with five clinicians participating from all across Europe.
The CPMS is a secure web-based application, developed by OpenApp in collaboration the European Commission (DG SANTE), which is used to support the European Reference Networks in the diagnosis and treatment of rare or low prevalence complex diseases or conditions across national borders.
At the moment EpiCARE is piloting the CPMS system to ensure that it is equipped with the technical requirements necessary for epilepsy diagnostic work, such uploading a video EEG file or utilising the screen share option during meetings.
We look forward to utilising CPMS in the diagnostic and therapeutic work for both for surgical and non-surgical cases over the coming months so that these virtual cross-border consultations between experts can lead to the improved diagnosis and treatment of all rare and complex epilepsy patients across Europe.
To watch an introductory video of the CPMS and how the panels work, click here
To access the CPMS click here