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The European rare disorder ecosystem: Norway ready or not?

A webinar about ERNs and Norway’s role on the international arena of rare disorders

This webinar took place on June 18th 2021, 10am 2pm

In this webinar, the collaboration for rare disorders with a special focus on European Reference networks (ERN) and Norway’s role was the focus. Norway is already part of a few ERNs, but many more Norwegian health care providers are on their way into more networks. However, there are challenges ahead of us and we need to work together to solve them. One critical question is the accessibility of Clinical Patient Management System (CPMS) which currently is unavailable from Norwegian hospitals.

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