June 27, 2022 – July 1, 2022 all-day
11th European Conference on Rare Diseases & Orphan Products (ECRD 2022) @ Online

ECRD 2022 Programme

ECRD 2022 has been designated as an official event of the 2022 French Presidency of the Council of the European Union.

The ECRD 2022 programme mirrors the afore-mentioned political opportunities and policy milestones and also presents an opportunity to hear from the European and international institutions, key opinion leaders working in the field and persons living with a rare disease to shape the best possible future framework of policies.

ECRD 2022 will take place fully online and is spread over 5 half days, providing the opportunity to build upon the success from the last online conference, expand outreach to key stakeholders, showcase strong political support and build momentum for post-ECRD 2022 implementation. ECRD 2022 will also be among our most inclusive and sustainably responsible conferences to date!

On the first day of ECRD 2022, the Opening Plenary Session sets the scene for this year’s online conference and will be followed by an orientation and networking session along with several parallel Thought Leader sessions.

The following three days are dedicated to discussions on how to reach our 3 visionary goals for people living with a rare disease, inspired by the Rare 2030 project and implemented through a new policy framework.

A Closing Plenary on Day 5 reminds the audience that rare diseases must be addressed across all of Europe (beyond the EU) and on a global scale. This closing session will also leave participants with a clear call to action in the immediate, medium and long-term future.