All Party Parliamentary Group Meeting On European Reference Networks
On Monday 9 July the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions held a meeting on the effect of Brexit on [...]
16 07, 2018
29 03, 2018
SCORE is accessible to EpiCARE ERN members
The SCORE cloud for EpiCARE is now accessible to all EpiCARE ERN members. SCORE stands for Standardized Computer-based Organized Reporting of EEG. SCORE is a [...]
26 03, 2018
First Patients Enrolled in CPMS for EpiCARE
EpiCARE is delighted to report that on the 26th March 2018, on Purple Day for Epilepsy, we enrolled our first three patients in the Clinical Patient [...]
20 02, 2018
Rare Disease Research: European Reference Networks Are Off To a Good Start
One year on from their launch, the European reference networks are helping patients access treatment and research from across the EU, writes Vytenis Andriukaitis. Elisa, [...]
22 12, 2017
Christmas Message from Professor Helen Cross
Dear EpiCARE members, As we come to the end of 2017, I want to thank you all for your hard work and contributions as we [...]
20 11, 2017
Clinical Patient Management System (CPMS) is live from 12pm CET 20th November 2017 – UPDATED 19/01/2018
The Clinical Patient Management System (CPMS) is one of the three digital tools commissioned by the European Commission besides the ERN Collaborative Platform and the [...]
18 10, 2017
Patients and clinicians are reaping the benefits of European cooperation on rare and complex epilepsies | Professor Helen Cross
Specialist healthcare providers in the UK are part of a Europe-wide network which aims to improve the understanding and management of rare and complex epilepsies. [...]
18 09, 2017
The European Reference Networks Launch
The European Reference Networks were officially launched in Vilnius on 8/9 March 2017. The ERN EpiCARE held its inaugural launch meeting on 3rd June 2017 [...]