EpiCARE’s 2nd Annual Meeting
EpiCARE held its 2nd Annual Meeting on the 22nd-23rd February 2019 in London at the Holiday Inn Bloomsbury Hotel. On Friday 22nd February, we had [...]
28 02, 2019
28 11, 2018
Aicardi Syndrome: from defining the phenotype to unravelling the genotype
The EpiCARE Fondazione Istituto Neurologico Nazionale Casimiro Mondino Centre, Pavia, Italy is at the origine of the creation of an experts group to exchange findings from ongoing research, [...]
5 11, 2018
EpiCARE features in the EUProtects campaign
As many as 8,000 rare diseases affect the lives of around 30 million people in the EU every day. Many of those affected by a [...]
15 10, 2018
International Experts Workshop on Cannabinoids in Epilepsy
The EpiCARE Working package on Education and Training organised near Lyon, France a 2 days workshop on Cannabinoids in epilepsy gathering nearly 30 child and [...]
14 09, 2018
AES Clinical Science Research Award goes to Prof Helen Cross
We are delighted to announce that Professor Helen Cross, our ERN Coordinator has been selected as the recipient of the prestigious American Epilepsy Society Clinical [...]
3 09, 2018
Prestigious ILAE Awards go to EpiCARE leads
The 13th European Congress on Epileptology (ECE 2018) took place in Vienna, Austria on 26-30th August 2018 organised by the International League Against Epilepsy (ILAE). [...]
16 07, 2018
All Party Parliamentary Group Meeting On European Reference Networks
On Monday 9 July the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions held a meeting on the effect of Brexit on [...]
29 03, 2018
SCORE is accessible to EpiCARE ERN members
The SCORE cloud for EpiCARE is now accessible to all EpiCARE ERN members. SCORE stands for Standardized Computer-based Organized Reporting of EEG. SCORE is a [...]
26 03, 2018
First Patients Enrolled in CPMS for EpiCARE
EpiCARE is delighted to report that on the 26th March 2018, on Purple Day for Epilepsy, we enrolled our first three patients in the Clinical Patient [...]
20 02, 2018
Rare Disease Research: European Reference Networks Are Off To a Good Start
One year on from their launch, the European reference networks are helping patients access treatment and research from across the EU, writes Vytenis Andriukaitis. Elisa, [...]