LAUNCH of the call for new members to join existing ERNs on the 30th September 2019
We are pleased to inform you that the call for new members to join existing ERNs is going to be open on the 30 of [...]
24 09, 2019
23 09, 2019
Report on the First 3 Years Cycle (2017-2019) of Epiped-Treatment Course
EPIPED COURSE on Treatment Strategies in Paediatric Epilepsies is an educational activity of the European Reference Network EpiCARE in partnership with the Paediatric Epilepsy Department [...]
22 09, 2019
1st International Symposium on Genetic Syndromes with Movement Disorders and Epilepsy
We have the pleasure to inform you that the 1st International Symposium on Genetic Syndromes with Movement Disorders and Epilepsy will be held in Barcelona, Spain on [...]
10 07, 2019
How EpiCARE makes a difference for those with rare and complex epilepsies – ePAG Co-Chair shares her view with Genetic Alliance UK
Allison Watson, Co-Founder of Ring20 Research and Support UK CIO and Co-Chair of EpiCARE’s patient advisory group (ePAG) wrote on the benefits of European Reference [...]
28 02, 2019
EpiCARE’s 2nd Annual Meeting
EpiCARE held its 2nd Annual Meeting on the 22nd-23rd February 2019 in London at the Holiday Inn Bloomsbury Hotel. On Friday 22nd February, we had [...]
28 11, 2018
Aicardi Syndrome: from defining the phenotype to unravelling the genotype
The EpiCARE Fondazione Istituto Neurologico Nazionale Casimiro Mondino Centre, Pavia, Italy is at the origine of the creation of an experts group to exchange findings from ongoing research, [...]
5 11, 2018
EpiCARE features in the EUProtects campaign
As many as 8,000 rare diseases affect the lives of around 30 million people in the EU every day. Many of those affected by a [...]
15 10, 2018
International Experts Workshop on Cannabinoids in Epilepsy
The EpiCARE Working package on Education and Training organised near Lyon, France a 2 days workshop on Cannabinoids in epilepsy gathering nearly 30 child and [...]
14 09, 2018
AES Clinical Science Research Award goes to Prof Helen Cross
We are delighted to announce that Professor Helen Cross, our ERN Coordinator has been selected as the recipient of the prestigious American Epilepsy Society Clinical [...]
3 09, 2018
Prestigious ILAE Awards go to EpiCARE leads
The 13th European Congress on Epileptology (ECE 2018) took place in Vienna, Austria on 26-30th August 2018 organised by the International League Against Epilepsy (ILAE). [...]