When:
March 19, 2022 all-day
2022-03-19T00:00:00+01:00
2022-03-20T00:00:00+01:00

The KCNB1 France association is happy to invite you to the 2nd international conference for « Families/ Doctors / Researchers » that will occur on Saturday March 19th 2022 at the Imagine Institute / Necker children’s hospital 149 rue de Sèvres, 75015 Paris, France.
Professor Rima Nabbout and her team of researchers, along with the reference center for rare epilepsies at the Necker children’s hospital in Paris will share with us the progress made with the KCNB1 research program.

The day will be split in two parts:
– 10AM to 1PM: Conference about the progress made with the research program, coordinated by Pr. Rima Nabbout and Dr. Edor Kabashi, and meeting/discussion with other healthcare professionals involved with this pathology.
– 1PM to 2PM: Lunch break.
– 2PM to 6:30PM: Individual discussions « Patient/ Family /Doctor» at the Imagine Institute.
These discussions with families and patients will allow to evaluate each patient’s situation, and to canvass information to help with understanding the illness.
– In the event some families cannot attend with the patient, a questionnaire will be sent to you in early January. It will include questions about medical protocols, the patient’s development, his/her support system etc. It is best that we receive your answers before the conference.

USEFUL INFORMATION:
– The speeches will be in French, the presentations will be shared and translated to English.
– For families that are unable to attend, we plan to broadcast the meeting via video conference. We will share the access information at a later point in time.
– Transportation and hotel nights are at the family’s/participant’s expense.
– Lunch will be catered and paid for participants who will have opted in for the day.
– Important : Please provide us with the names and ages of adults and children who will be attending, as well as any specific information regarding their mobility and behavior so we can welcome everyone in the best possible conditions.
– The amphitheater is normally accessible by elevator, but a dysfunction may always happen.
– We will make available an open space for both adults and children (it is not a game room but a waiting space for children), and a consultation room.

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