November 14, 2022 – November 17, 2022 all-day
All ePAG meeting 2022

What is the theme of this year’s All-ePAG meeting?

The theme for this year is “How to get better at listening to your community to represent their needs and perspectives”.

Throughout the week we will reflect on why listening to your community matters, how to best capture my community’s voice and where to start and celebrate together some excellent examples from different perspectives.

This year’s theme was inspired by a guide co-developed by EURORDIS and the ePAG community:  Speak Up. Listen Up. Follow-Up guide: A brief guide for rare disease patient organisations on how to listen to the community.

For more information on this event, check out the programme here.