The 2nd Strategy Assembly of Coordinators …
The European Reference Networks (ERNs) were launched in 2017. They involve more than 900 highly specialised health care teams, located in more than 300 hospitals in 26 European countries. The main mission of the ERNs is to help patients with rare or low-prevalence complex diseases.
A disease is defined as rare when it affects fewer than one in 2 000 people, is serious, chronic and often life-threatening. Between 5 000 and 8 000 of rare diseases affect daily life of around 30 million people in the EU.
The ERN EpiCARE brings together highly specialized health centres (38 full members and 12 affiliated partners) in 26 European countries with expertise in rare and complex epilepsies.
If you are a healthcare professional and would like to refer a patient to us, or if you are a patient yourself, or a family member of a patient, please get in touch via our contact page.
To improve accessibility of detailed diagnostics to individuals of all ages with rare and complex epilepsies across Europe, including clinical evaluation and investigation.
To develop treatment protocols and monitor standardised outcomes of rare and complex epilepsies.
To improve awareness and accessibility to protocols for physicians and individuals with rare and complex epilepsies across Europe for treatment.
To enhance educational activities and training opportunities across Europe by interchange across the network.
To enhance opportunities for registries, and collaborative research for the benefit of individuals with rare and complex epilepsies across Europe.
Location: Wallenberg Centre, Gothenburg
Dates: 29-31 March, 2023
Organizers: Johan Zelano and Francesco Brigo
Host organization: University of Gothenburg
In 2019, the first edition of the congress Seizures and Stroke attracted over 130 participants from over ten countries to Gothenburg. Our meeting now returns – with a widened scope to all symptomatic and structural epilepsies. A three-day program of cutting-edge research and clinical presentations are combined with a teaching course for scientists and clinicians starting out in the field, and there are ample poster- and platform-presentation opportunities.
Join us at Wallenberg Congress Center in Gothenburg on 29-31 March 2022. Abstract submission deadline is at 1 December and early bird registration closes 15 December.
The aim of the 3 year cycle EPIPED Treatment is to reduce the geographical and knowledge
gap by providing neurologists and child neurologists involved in epilepsy care the opportunity
for a regular update on best treatment practices. The concept of EPIPED is based on a 3 year
cycle of independent annual training courses , developed specifically for child neurologists,
physicians and epilepsy nurses caring for patients with epilepsy.
A limited number of plenary interactive sessions cover different aspects of treatment
strategies in children with all types of epilepsies, particularly the rare and complex ones.
Topics treated are related to pharmacology, pharmacodynamics, pharmacokinetics, genetics,
analysis of AED trials, design of clinical trials, pre surgical evaluation, optimal choice of AEDs,
review of existing guidelines (ILAE, NICE, other), data on ketogenic diet, neurostimulation,
indications for resective and palliative surgery, pharmacological treatments other than with
AEDs, update on the development of targeted therapies.
This link gives you access to the full program of the 3 year cycle.
An important number of interactive modules allow participants, limited to 10 15 per group, to
discuss with experts regarding the best clinical practices and therapeutic strategies.
Participants, limited to 40 45, are offered the opportunity to also bring their own clinical cases
for discussion of optimal treatment approaches. This educational activity is addressing the
corresponding learning objectives of the ILAE curriculum (Blümcke et al 2019)
The Neuroscience Department of Bambino Gesù Children’s Hospital – IRCCS, Rome – Italy with the endorsement of International League Against Epilepsy (ILAE) – Europe, the European Reference Network on Rare and Complex Epilepsies (EpiCARE), and Italian Chapter of ILAE (Lega Italiana contro l’Epilessia – LICE) is presenting the educational initiative – “Drug Resistant Epilepsies – 10th International Residential Course” that will take place in Tagliacozzo (AQ) – Italy.
The Course is planned from 30 April – 6 May 2023
This course is clinically – oriented, targeted to specialists at the second and third level of epilepsy care and focused on comprehensive aspects of diagnosis and treatment of children and adults with epilepsy. It also includes the basic sciences in clinical epileptology issues, and comprehensive care of patients with epilepsy.
The faculty consists of leading International epileptologists. The faculty members give lectures and conduct interactive case discussions and/or tutorials on relevant aspects of epileptology. The working groups are supposed to be a relevant part of the course.
Specialists in neurology, psychiatry, neuropsychiatry, paediatric neurology, paediatrics, clinical neurophysiology and psychology are welcome to apply.
The course is limited to a maximum of 36 applicants to allow an optimal level of interaction with the faculty members.
Applicants should submit together with the application form, an updated CV, a short abstract with a case report to be discussed during the course, and a recommendation letter signed by the head of department or head of research lab.
Registration fee: 1.400 Euro + VAT (22%). It includes accommodation in twin room on full board basis (single supplement will be charged separately), social events, return transfer to Rome airport at scheduled times and access to all the educational activities (lectures, tutorials, case discussions, working groups).
Bursaries will be granted to a limited number of applicants selected among those who will fulfill the following requirements:
– Age under 40 years at the time of the Course (April 30, 2023)
– CV and short case report
(bursary’ recipients will be accommodated in double rooms only)
The ECCN 2021 was cancelled, but a day Congress on the above date will be organised online!
It will be free to attend but pre-registration is required ( see below)
PROVISIONAL PROGRAM EMEAC DIGITAL DAY OCT 26
9.00-10.15 am CEST Meet Your Executive Committee
10.15-11.15 am CEST General Assembly
11.15-11.30 am CEST break
11.30 am-12.30 pm CEST ORAL COMMUNICATION ( 4 sessions in parallel)
1-Epilepsy / 2-Nerve conduction and sensation/ 3-Theoretical analyses/4- Miscellaneous
12.30 pm-1.30 pm CEST Lunch
1.30-3.15 pm CEST HIGHLIGHT POSTERS ( 4 sessions in parallel)
1-Therapeutics- Auditory and Autonomic- Dystonia-DBS / 2-EEG-Epilepsy / 3-IoM-NMD / 4- Nerve conduction-Miscellany-motor control
3.15-3.30 PM CEST break
3.30-4.15 pm CEST EBRA invited presentation
4.15-5.00 pm CEST Invited lecture
“Drug-resistant epilepsy in the 21st century: From molecular mechanisms to precision therapies” will take place on Tuesday, 20 June 2023 in Prague, Czech Republic.
This exciting and unique one-day meeting will introduce and discuss in detail all the major developments including current clinical indications for Drug-resistant epilepsy in the 21st century. A broad faculty of international experts will bring you up-to-date with the history, practice and future developments in the rapidly developing field of drug-resistant epilepsy.
The concept of drug-resistant epilepsy is in motion. What started as a simple definition of medically intractable seizure disorder has morphed into a mosaic of conditions with various ages at onset, clinical presentations, genetic etiologies and increasingly of therapeutic options.
Drug-resistant epilepsy is no more a single disorder but a multitude thereof. The originally clear-cut boundaries between “genetic” and “structural” epilepsy dissolve and re-organize themselves around specific genes and genetic variants that participate in the formation of structural and functional abnormalities of brain cortex.
The symposium preceding EPNS Congress 2023 in Prague will guide you through the complex phenotypes and clinical presentations of patients with drug-resistant epilepsy. You will see how patient-derived genomic and phenotypic data contribute to the formation of relevant pre-clinical models that enable us to analyze the pathophysiological mechanisms of drug-resistant epilepsy. Through the improved understanding of epilepsy pathogenesis we will introduce novel approaches to the individualized targeted therapy of drug-resistant epilepsy and the new vistas for patient care and management.
This symposium is suitable for neurologists, paediatric neurologists, epileptologists, neuophysiologists, neuroscientists, radiologists, neurosurgeons, allied health professionals, medical and allied health students.
The 2nd Strategy Assembly of Coordinators …
Venice International University – International School …