EpiCARE: a European Reference Network
for rare and complex epilepsies

Clinical Frontiers in Pediatric Neurology is an international congress focusing on the state of the art pediatric neurology. This regional congress, which is taking place in Ljubljana, Slovenia from October 6 – 7, 2022, is hosting distinguished international speakers and will be enabling successful researchers and clinicians from the region to present their work and to extend their networks.

It is intended for seasoned pediatric neurologists and pediatricians, as well as residents in pediatric neurology, inters and students with special interests in the field. You will have the opportunity to make new friends, discuss the old and new problems and get new ideas and new collaborations.

Check out the programme here: http://frontiers.pedkl.si/2022-2/scientific-programme-2022/)

‘DEFINING THE FUTURE FOR AHC & ATP1A3 DISEASES’

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A 3 DAY UNIQUE EVENT INCORPORATING:

• 10-year anniversary conference commemorating the discovery of the ATP1A3 gene in AHC and ATP1A3 diseases

• The 10th Symposium on ATP1A3 in disease

This 3 Day unique event will be focused on those most impacted by research outcomes; with an opportunity to learn from their experiences and their priorities for future research to improve the research landscape and clinical care.

It will also include an overview of the last 10 years since the gene discovery, alongside current and future research plans for AHC and ATP1A3 Diseases.

See the programme of the event.

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Where? – Hybrid event – EDINBURGH and ONLINE

Face-toFace VENUE:

Conference Centre, The Royal College of Physicians of Edinburgh,

9 Queens Street, Edinburgh, EH2 1JQ

When? – 19th-21st October 2022

The conference will run from Wednesday-Friday, with an evening formal dinner for delegates and speakers on Thursday 20th October (Great Hall, The Royal College of Physicians of Edinburgh)

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BRINGING TOGETHER PEOPLE WITH LIVED EXPERIENCE OF

AHC AND ATP1A3 DISEASES, RESEARCHERS AND CLINICIANS

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To submit an oral or poster presentation, please email: support@ahcuk.org by 31st August 2022. All submissions must use accessible language and style. Prizes for best oral and poster presentation.

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The co-applicants and organising committee of the 10-year conference and 10th Symposium on ATP1A3 in disease are grateful for the generous grant from the European Joint Programme on Rare Diseases to support this event.

The ILAE British Branch Epilepsy Neuroimaging Course was successfully launched in March 2017. Medical imaging is integral to the diagnosis, monitoring and treatment of modern epilepsy care and has greatly increased our understanding of this complex neurological condition. A fundamental understanding of the latest imaging modalities and analytical techniques is essential to ensure clinicians are best placed to choose the correct types of scans, counteract for patient-specific anomalies, and better interpret the analytical outcomes, be it for adults or children with epilepsy. The forthcoming 4^th course will bridge the gap between pre-clinical and clinical neuroimaging, by extending the successful format of hands-on and small group tutorials to include the topics of pre-clinical MRI and fMRI.

Open to all healthcare professionals and affiliates and MSc/PhD students, the 3-day course aims to provide both an overview and a solid foundation in state-of-the-art MRI and PET scanning in epilepsy.

THE COURSE WILL:

• Consist of lectures and small-group tutorials given by experienced MRI- and PET-clinicians / researchers
• Cover aspects of structural and functional MRI acquisition and analysis for both clinician and scientists
• Train participants on real patients’ data in hands-on laboratory exercises.

ON COMPLETION OF THE COURSE, THE PARTICIPANTS WILL BE ABLE TO:

• Employ MRI and PET to influence the clinical management of patients with epilepsy
• Select appropriate MRI sequences, and distinguish clinical and MR features of different etiologies
• Understand the role of advanced MRI and PET-MR acquisition and post-processing analysis methods, relevant for both clinical and pre-clinical neuroimaging.

https://epi-care.eu/wp-content/uploads/2022/10/Flyer_ILAE_Epilepsy_neuroimaging_course_2022.pdf

What is the theme of this year’s All-ePAG meeting?

The theme for this year is “How to get better at listening to your community to represent their needs and perspectives”.

Throughout the week we will reflect on why listening to your community matters, how to best capture my community’s voice and where to start and celebrate together some excellent examples from different perspectives.

This year’s theme was inspired by a guide co-developed by EURORDIS and the ePAG community:  Speak Up. Listen Up. Follow-Up guide: A brief guide for rare disease patient organisations on how to listen to the community.

For more information on this event, check out the programme here.