Latest News
Save the date – next EpiCARE activities
SAVE THE DATES FOR IMPORTANT EpiCARE ACTIVITIES TO COME December 16th afternoon – 19th (midday), 2021: EpiCARE brainstorming face-to-face workshop in Rome, Italy (a follow-up …
EpiCARE: a European Reference Network for rare and complex epilepsies
The European Reference Networks (ERNs) were launched in 2017. They involve more than 900 highly specialised health care teams, located in more than 300 hospitals in 26 European countries. The main mission of the ERNs is to help patients with rare or low-prevalence complex diseases.
A disease is defined as rare when it affects fewer than one in 2 000 people, is serious, chronic and often life-threatening. Between 5 000 and 8 000 of rare diseases affect daily life of around 30 million people in the EU.
The ERN EpiCARE brings together highly specialized health centres (28 full members and 15 affiliated partners) in 24 European countries with expertise in rare and complex epilepsies.
If you are a healthcare professional and would like to refer a patient to us, or if you are a patient yourself, or a family member of a patient, please get in touch via our contact page.
The objectives of the EpiCARE network
Accessibility
To improve accessibility of detailed diagnostics to individuals of all ages with rare and complex epilepsies across Europe, including clinical evaluation and investigation.
Developing treatment
To develop treatment protocols and monitor standardised outcomes of rare and complex epilepsies.
Awareness
To improve awareness and accessibility to protocols for physicians and individuals with rare and complex epilepsies across Europe for treatment.
Education
To enhance educational activities and training opportunities across Europe by interchange across the network.
Collaborative research
To enhance opportunities for registries, and collaborative research for the benefit of individuals with rare and complex epilepsies across Europe.
Agenda
Sep
9
Thu
Sep 9 – Sep 12 all-day
Reliable neuropathological work-up of epilepsy-associated brain lesions represents an important diagnostic value for the surgical management of patients with drug-resistant focal epilepsy. The international classification of epilepsies recognizes a large spectrum of brain lesions as potential predictors of disease progression and treatment response.
The 11th International Summer School for Neuropathology and Epilepsy Surgery is designed to enable participants to better recognize and classify various histopathological substrates of drug-resistant epilepsy. Topics related to the diagnosis and treatment of human focal epilepsies will be presented by internationally renowned faculty. Advanced hands-on histopathology training will be offered in small groups led by distinguished tutors who will review and discuss microscopy slides of selected cases with different staining protocols. Participants will also have the opportunity to present their own cases for discussion with the entire group. The workshop has been held in Germany, Brazil, USA and China since 2013, with the endorsement of the International League Against Epilepsy (ILAE).
Oct
28
Thu
Oct 28 – Oct 30 all-day
Recent advances in signal analysis and information technology have triggered a boom in the field of mobile health, with important applications to the management of patients with epilepsy, including seizure detection.
The International Congress on Mobile Health and Seizure Detection in Epilepsy became an important forum to disseminate, facilitate and accelerate progress in the development of mobile health solutions and seizure detection devices for patients with epilepsy.
The third edition of the congress will enhance information-exchange among researchers, high-tech companies, medical organizations and patients´ organizations facilitating networking, development of joint projects and collaborations in this quickly developing field.
In addition, interactive, educational hands-on sessions will contribute to the dissemination of novel technologies.
Main topics:
Pre-congress workshop on home video-EEG monitoring. Automated seizure detection in long-term video-EEG monitoring will be included into the pre-congress workshop
• Automated seizure detection using wearable devices: Which device for which patient?
• New devices: Is there a disruptor?
• From seizure detection to action: linking devices with interventions
• Wearable devices and differential diagnosis
• Seizure prediction: are we there yet?
• Objective seizure quantification and characterization
• Epilepsy apps: are they really changing the game?
• Telemedicine: are changes in practice caused by COVID-19 here to stay?
• Future research and development: in the aftermath of the clinical practice guideline on seizure detection – Panel discussion
Dec
16
Thu
This face-to-face brainstorming workshops is a follow-up of the « In search of Lost time » virtual workshop held in 2020.
More information will be provided soon.
If you have any questions, you can send an e-mail to info@epi-care.eu, or contact the organizing secretariat :
ORGANIZING SECRETARIAT
Via Nizza, 45 – 00198 Roma, Italy
Ph : +39 06 85355590 – Fax : +39 06 85356060
e-mail : maura.stella@ptsroma.it – www.ptsroma.it
Feb
17
Thu
Save the date for EpiCARE 2022 Annual General Assembly to be held in Lyon, France.
More information will be provided soon.
Jul
18
Mon
Jul 18 – Jul 29 all-day
The main objective of the 7th edition of the Advanced Epilepsy Course Bridging Basic with Clinical Epileptology is to train attendees to improve the critical competencies necessary to design an effective research project/activity in the field of epilepsy.
Subscribe
Latest News
Latest News
Epilepsy & Pregnancy: an European Survey report published by the IBE
It is our pleasure to share with all of you the report of a survey on Epilepsy and Pregnancy recently diffused by the International Bureau …
Latest News
New e-learning modules
Thanks to a funding for the CEF Telecom programme, and a co-funding by the European Agency INEA, we are proud to present 5 e-learning …
