ERN support Ukraine

The European Reference Networks are mobilizing to support Ukraine and its rare disease community.

EpiCARE also created a dedicated e-mail address for any questions regarding epilepsy: ukraine.epilepsies@epi-care.eu

Find more information and helpful resources: https://epi-care.eu/epicare-support-to-ukraine/

3rd Rome workshop - December 13th to 15th !

The third edition of the Rome workshop “In search of lost time” is taking place this winter, from December 13th to 15th !
 
Find the programme here to learn more about the topic, the sessions and the very interesting speakers!
 
Register here. and join us in Rome!

EJP Research Mobility Fellowship is now open!

EJP RD is pleased to announce that the 6th Research Mobility Fellowship call is open until November 18th!

The programme aims to support PhD students, postdocs and medical doctors in training to undertake scientific visits to foster specialised research training outside their country of residence.

The call text and all relevant information can be found here.

EpiCARE: a European Reference Network
for rare and complex epilepsies

The European Reference Networks (ERNs) were launched in 2017. They involve more than 900 highly specialised health care teams, located in more than 300 hospitals in 26 European countries. The main mission of the ERNs is to help patients with rare or low-prevalence complex diseases.

A disease is defined as rare when it affects fewer than one in 2 000 people, is serious, chronic and often life-threatening. Between 5 000 and 8 000 of rare diseases affect daily life of around 30 million people in the EU.

The ERN EpiCARE brings together highly specialized health centres (38 full members and 12 affiliated partners) in 26 European countries with expertise in rare and complex epilepsies.

If you are a healthcare professional and would like to refer a patient to us, or if you are a patient yourself, or a family member of a patient, please get in touch via our contact page.

The objectives of the EpiCARE network

Universal

Accessibility

To improve accessibility of detailed diagnostics to individuals of all ages with rare and complex epilepsies across Europe, including clinical evaluation and investigation.

Heartbeat

Developing treatment

To develop treatment protocols and monitor standardised outcomes of rare and complex epilepsies.

Shapes

Awareness

To improve awareness and accessibility to protocols for physicians and individuals with rare and complex epilepsies across Europe for treatment.

Book

Education

To enhance educational activities and training opportunities across Europe by interchange across the network.

Rocket

Collaborative research

To enhance opportunities for registries, and collaborative research for the benefit of individuals with rare and complex epilepsies across Europe.

Agenda

Dec
7
Wed
ERN-ITHACA Multidisciplinary Fetal Diagnostics Winter School @ Institut Imagine
Dec 7 – Dec 8 all-day
ERN-ITHACA Multidisciplinary Fetal Diagnostics Winter School @ Institut Imagine | Paris | Île-de-France | France

The Winter School on Fetal Diagnosis organised by the ERN-ITHACA aims to address a learning gap in fetal phenotyping, genetic analysis, and data interpretation. As a single-day course it will include basic lectures and in depth-workshops on phenotyping, prenatal genomic testing, and the implications for genetic counselling. To finalize, the program will bridge the addressed fields with interdisciplinary case discussions.

The course is open to specialists and specialists in training in the fields of clinical and laboratory genetics, bioinformatics, obstetrics, pathology with a special interest in prenatal medicine.
The program gathers excellent scientists from ITHACA affiliates and collaborating partners in the fields of fetal-maternal-medicine, fetal imaging, fetal pathology, and human genetics so that participants benefit entirely from the vast expertise.

The Winter School is adjunct to the “Best of” annual meeting of the French Society of Fetal pathology (SoFFoet – http://soffoet.fr/) on Wednesday 07th December and students are invited also to join.

Main topics addressed

This first course provides an overview of the subject matter and methodological principles in the complex field of prenatal medicine. It includes an introduction to HPO and its application on fetal phenotypes, opportunities and limitations of fetal imaging and fetal pathology as well as prenatal clinical genetics in the area of genomic medicine.

To know more about the Winter School: Multidisciplinary Fetal Diagnostics Winter School – ERN ITHACA

Dec
8
Thu
Monthly EpiCARE post-surgical case discussion
Dec 8 @ 1:00 pm – 2:00 pm
Organized by Prof. Ingmar Blümcke from the University Hospital of Erlangen, Germany, the monthly EpiCARE post-surgical case discussion is still going!

The ZOOM link is always the same for all meetings and attached below for your information. Please feel free to share and invite your colleagues !

 

Jan
12
Thu
Monthly EpiCARE post-surgical case discussion
Jan 12 @ 1:00 pm – 2:00 pm
Organized by Prof. Ingmar Blümcke from the University Hospital of Erlangen, Germany, the monthly EpiCARE post-surgical case discussion is still going!

The ZOOM link is always the same for all meetings and attached below for your information. Please feel free to share and invite your colleagues !

 

Feb
9
Thu
Monthly EpiCARE post-surgical case discussion
Feb 9 @ 1:00 pm – 2:00 pm
Organized by Prof. Ingmar Blümcke from the University Hospital of Erlangen, Germany, the monthly EpiCARE post-surgical case discussion is still going!

The ZOOM link is always the same for all meetings and attached below for your information. Please feel free to share and invite your colleagues !

 

Mar
9
Thu
Monthly EpiCARE post-surgical case discussion
Mar 9 @ 1:00 pm – 2:00 pm
Organized by Prof. Ingmar Blümcke from the University Hospital of Erlangen, Germany, the monthly EpiCARE post-surgical case discussion is still going!

The ZOOM link is always the same for all meetings and attached below for your information. Please feel free to share and invite your colleagues !

 

Mar
29
Wed
Meeting on structural and symptomatic epilepsies
Mar 29 – Mar 31 all-day

Location: Wallenberg Centre, Gothenburg
Dates: 29-31 March, 2023
Organizers: Johan Zelano and Francesco Brigo
Host organization: University of Gothenburg

In 2019, the first edition of the congress Seizures and Stroke attracted over 130 participants from over ten countries to Gothenburg. Our meeting now returns – with a widened scope to all symptomatic and structural epilepsies. A three-day program of cutting-edge research and clinical presentations are combined with a teaching course for scientists and clinicians starting out in the field, and there are ample poster- and platform-presentation opportunities.

Join us at Wallenberg Congress Center in Gothenburg on 29-31 March 2022. Abstract submission deadline is at 1 December and early bird registration closes 15 December.

Welcome!

Francesco Brigo
Johan Zelano

www.stess2023.se

Apr
13
Thu
Monthly EpiCARE post-surgical case discussion
Apr 13 @ 1:00 pm – 2:00 pm
Organized by Prof. Ingmar Blümcke from the University Hospital of Erlangen, Germany, the monthly EpiCARE post-surgical case discussion is still going!

The ZOOM link is always the same for all meetings and attached below for your information. Please feel free to share and invite your colleagues !

 

May
9
Tue
18th European Congress of Clinical Neurophysiology
May 9 – May 12 all-day

The ECCN 2021 was cancelled, but a day Congress on the above date will be organised online!

It will be free to attend but pre-registration is required ( see below)

PROVISIONAL PROGRAM EMEAC DIGITAL DAY OCT 26
9.00-10.15 am CEST Meet Your Executive Committee
10.15-11.15 am CEST General Assembly
11.15-11.30 am CEST break

11.30 am-12.30 pm CEST ORAL COMMUNICATION ( 4 sessions  in parallel)

1-Epilepsy / 2-Nerve conduction and sensation/ 3-Theoretical analyses/4- Miscellaneous
12.30 pm-1.30 pm CEST Lunch

1.30-3.15 pm CEST HIGHLIGHT POSTERS ( 4 sessions in parallel)

1-Therapeutics- Auditory and Autonomic- Dystonia-DBS / 2-EEG-Epilepsy / 3-IoM-NMD / 4- Nerve conduction-Miscellany-motor control

3.15-3.30 PM CEST break
3.30-4.15 pm CEST EBRA invited presentation
4.15-5.00 pm CEST Invited lecture

More information and registration here. 

 

May
11
Thu
Monthly EpiCARE post-surgical case discussion
May 11 @ 1:00 pm – 2:00 pm
Organized by Prof. Ingmar Blümcke from the University Hospital of Erlangen, Germany, the monthly EpiCARE post-surgical case discussion is still going!

The ZOOM link is always the same for all meetings and attached below for your information. Please feel free to share and invite your colleagues !

 

Jun
8
Thu
Monthly EpiCARE post-surgical case discussion
Jun 8 @ 1:00 pm – 2:00 pm
Organized by Prof. Ingmar Blümcke from the University Hospital of Erlangen, Germany, the monthly EpiCARE post-surgical case discussion is still going!

The ZOOM link is always the same for all meetings and attached below for your information. Please feel free to share and invite your colleagues !

 

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