Category: Latest News

International Experts Workshop on Cannabinoids in Epilepsy

The EpiCARE Working package on Education and Training organised near Lyon, France a 2 days workshop on Cannabinoids in epilepsy gathering nearly 30 child and adult neurologists and pharmacologists. Scientific Committee: A. Arzimanoglou (France), U. Brandl (Deutschland), HJ Cross (UK), A. Gil-Nagel (Spain), L. Lagae (Belgium), C. Landmark (Norway); N. Specchio (Italy); E. Thiele (USA). The proceedings will […]

AES Clinical Science Research Award goes to Prof Helen Cross

We are delighted to announce that Professor Helen Cross, our ERN Coordinator has been selected as the recipient of the prestigious American Epilepsy Society Clinical Science Research Award! This award is given by the Society to recognise professional excellence and will be presented at the annual meeting in New Orleans in December 2018. Congratulations.

Prestigious ILAE Awards go to EpiCARE leads

The 13th European Congress on Epileptology (ECE 2018) took place in Vienna, Austria on 26-30th August 2018 organised by the International League Against Epilepsy (ILAE). ILAE Commission on European Affairs received numerous nominations for the European Awards 2018. The nominees were of a very high calibre and much deliberation went into selecting the recipients. We are delighted […]

All Party Parliamentary Group Meeting On European Reference Networks

On Monday 9 July the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions held a meeting on the effect of Brexit on European Reference Networks (ERNs). The APPG ran this event following guidance from Genetic Alliance UK. Alongside rare disease medicines regulation and access, and research funding and regulation, ERNs have been […]

SCORE is accessible to EpiCARE ERN members

The SCORE cloud for EpiCARE is now accessible to all EpiCARE ERN members. SCORE stands for Standardized Computer-based Organized Reporting of EEG. SCORE is a computer based system for EEG reporting and classification, where the physician can construct the report based on predefined terms and elements for each EEG feature as well as clinical phenomena. […]

First Patients Enrolled in CPMS for EpiCARE

EpiCARE is delighted to report that on the 26th March 2018, on Purple Day for Epilepsy, we enrolled our first three patients in the Clinical Patient Management System (CPMS). All patients are from Great Ormond Street Hospital for Children, London. On the same day we also launched our first panel and the first virtual meeting was […]

Rare Disease Research: European Reference Networks Are Off To a Good Start

One year on from their launch, the European reference networks are helping patients access treatment and research from across the EU, writes Vytenis Andriukaitis. Elisa, from Alessandria in Italy, suffers from osteogenesis imperfecta. This rare genetic disease causes brittle bones and affects one in 15,000 people. Elisa, aged 30, was diagnosed with the disease as […]

Christmas Message from Professor Helen Cross

Dear EpiCARE members, As we come to the end of 2017, I want to thank you all for your hard work and contributions as we move forward in establishing our network EpiCARE. We are now almost at the end of the first year. Gradually aspects of the network are beginning to gel although a slow […]

Patients and clinicians are reaping the benefits of European cooperation on rare and complex epilepsies | Professor Helen Cross

Specialist healthcare providers in the UK are part of a Europe-wide network which aims to improve the understanding and management of rare and complex epilepsies. If UK participation is discontinued following Brexit, patients and clinicians on both sides will be denied access to leading expertise and cutting-edge new treatments – with likely poorer outcomes. Epilepsy […]