Memorandum of Understanding signed with the EPNS
The EPNS, European Paediatric Neurology Societey and the ERN EpiCARE signed a Memorandum of Understanding, strengthening our collaboration and promoting ERN-EpiCARE and EPNS as active organisations for child neurology and rare and complex epilepsies in Europe. Our goal is to improve availability and quality of educational and scientific endeavors and materials, e.g., guidelines and recommendations, […]
EpiCARE signs MoU with the EAN
European Academy of Neurology (EAN) President, Prof. Claudio Bassetti, and Prof. Alexis Arzimanoglou, Coordinator of the European Reference Network for Rare and Complex Epilepsies (ERN-EpiCARE), are pleased to announce that EAN and ERN-EpiCARE have signed a memorandum of understanding to promote and maintain the harmonisation of training and clinical practice in Europe and advance optimal care […]
EpiCARE support to Ukraine
The 24 European Reference Networks are mobilizing to support Ukraine and particularly its rare disease community. Our key actions : Creation of a common ERN website with contact information to reach each ERN: https://www.erncare4ua.com/ Dedicated e-mail address: ukraine.epilepsies@epi-care.eu Ensuring to patients coming from Ukraine a fast access to rare diseases specialists / referrals when needed EpiCARE medical teams and the ILAE are […]
4EU Course on Pathogenesis of Epilepsy
The 2022 International 4EU+ Course on Pathogenesis of Epilepsy explores the neurobiology of epilepsy from basic and clinical perspectives. The main objectives of this course are to deepen your knowledge on the pathophysiology of epilepsy and seizure, introduce you to modern research tools that are used in epilepsy research, and identify the current challenges and […]
Rome Workshop: BUILDING THE EPICARE 2027 HORIZON
Save the date ! The second edition of the “In search of Lost Time” will take place in Rome, on December 16-18th 2021. The European Reference Networks for Rare Diseases are approaching the end of the first 5 years EU plan. Consequently, the 2021 workshop organized at the initiative of the Italian centres and supported […]
EpiCARE joins forces with Solve-RD
Solve-RD is a Horizon2020-funded project, dedicated to ‘solve the unsolved rare diseases’. European Reference Networks (ERNs) are the European clinical expertise centers for rare diseases form the clinical core of Solve-RD by contributing their unsolved RD cohorts, diagnostic research expertise and infrastructure. Each ERN established their own Data Interpretation Task Force (DITF) within Solve-RD comprising […]
Save the date – next EpiCARE activities
SAVE THE DATES FOR IMPORTANT EpiCARE ACTIVITIES TO COME December 16th afternoon – 19th (midday), 2021: EpiCARE brainstorming face-to-face workshop in Rome, Italy (a follow-up of the « In search of Lost time » virtual workshop held in 2020). February Thursday 17th & Friday18th, 2022: EpiCARE 2022 Annual General Assembly to be held in Lyon, France. More information on […]
Epilepsy & Pregnancy: an European Survey report published by the IBE
It is our pleasure to share with all of you the report of a survey on Epilepsy and Pregnancy recently diffused by the International Bureau for Epilepsy While the majority of women with epilepsy will have successful pregnancies, it is vital that women of childbearing age are fully informed on all issues relating to epilepsy […]
New e-learning modules
Thanks to a funding for the CEF Telecom programme, and a co-funding by the European Agency INEA, we are proud to present 5 e-learning modules developped in collaboration with the ILAE. The goal of these modules is to help train clinicians to diagnosis of rare and complex epilepsies. Each case present a rare […]
The European rare disorder ecosystem: Norway ready or not?
A webinar about ERNs and Norway’s role on the international arena of rare disorders This webinar took place on June 18th 2021, 10am 2pm In this webinar, the collaboration for rare disorders with a special focus on European Reference networks (ERN) and Norway’s role was the focus. Norway is already part of a few ERNs, […]
